I attempted to go to bed last night, but couldnt fall asleep..so instead of bothering my husband I chose to find my way to the couch ..."BAD MISTAKE" I have not slept in the same bed with my husband for about 6 years...the bed started hurting my bad and then before I knew it our 2 year old was climbing into our bed..."I cannot stand children in the bed" So I started sleeping on the couch, then my husband bought me a wonder (heating and massage) recliner..I slept there for 2 years..I am a traveling sleeper. So just this week I have attempted to sleep in the same bed with my husband..First night was terrble..no TV (I love sleeping with the TV)..the ceiling fan noise drove me crazy and then of all nights my husband felt the need to snore (something he does not usually do). the second night..I put a little fan by my head to not hear the ceiling fan..slept pretty good. Third night..pretty good..fell asleep before he turned off the TV, I woke up feeling pretty good. So last night because of not being able to go to sleep, I chose the couch. I feel terrible today..my head hurts, my hip and my back are killing me..the rest of me just aches. 2 hydrocodone taken before being awake 2 hours...feeling a little better. My son and I went to starbucks and got our daily coffee..I completely beleive it makes me feel better..all in the head I am sure :)
I sit here in my chair, drinking dr pepper, attempting to feel better, doing a little laundry.
I am still waiting to hear from the kidney doctor as to when I can have the blood work, ultrasound the next appointment to see the doctor in hopes of getting a good diagnosis....
Thursday, July 30, 2009
Wednesday, July 29, 2009
Kidney doctor
Well, after making my way to McKinney..about 40 miles down the road to meet with the kidney doctor..almost seems a waist. Though it really was not, I didnt get much from the appointment. I am being sent for blood work (surprise) and an ultrasound of the kidneys. She did a simple exam, asked me a few questions and pretty much sent me on my way. I asked her what this was all about..she said that most of the time scarring was caused by reflux, but since I had not really ever had kidney problems that is the reason for the other stuff to see if it can be seen as to what has caused the scarring. They will call me tomorrow with appointment times to get the follow up stuff.
Today my legs hurt, have a headache and am tired (as always)
Today my legs hurt, have a headache and am tired (as always)
"I can't see!"
I had a doctors appointment this morning..well I didnt actually see the doctor, had the test VNG done....here is what the test is...Videonystagmography (VNG) is designed to test inner ear and central motor functions. VNG testing is considered the new standard for testing inner ear functions over Electronystagmography (ENG), this is due to the fact that a VNG measures the movements of the eyes directly through infrared cameras, instead of measuring the mastoid muscles around the eyes with electrodes like the previous ENG version. VNG testing is considered to be more accurate, consistent, and comfortable for the patient. Due to these facts, a superior test is more easily achieved. So there we go..all's I can say, I had on these huge goggles, could see my eyeball on a computer screen. Eventually they kept you in the black, having you ly on you back & sides.. all in the dark..then they blow cold air in each ear, then hot air in each ear..nothing painful, just have a headache now
Headed to the kidney doctor in a bit..we will see what they say...x cross fingers, no biopsy :(
Headed to the kidney doctor in a bit..we will see what they say...x cross fingers, no biopsy :(
dragging bootie..
last night, hit the sack quite early, was so tired from the medically emotional day. Crawled into bed in lots of pain..my legs and back were killing me. Yelled for the hubby to massage my back..the knots in my legs were bigger and in pain.
Tuesday, July 28, 2009
The 4th or so beginning
I am starting this blog in hopes of other "Medical Mysteries" finding their way here for discussions in hopes that different minds coming together might someday diagnose me and or another blogger find the answer to their "Medical Mystery".
One year ago today, I woke up with pain in my left arm and breast. Thinking this was just something minimal, I headed to my PCP to get something for the pain. With the next week I saw 4 doctors, has a mammogram, ultrasound, x-rays and was on medication. Nothing was found, take the meds, use ice and it should all get better. Within weeks the pain had traveled across my chest to the other side. By the first of September, I was in so much pain I couldn't move my neck, my low back was in terrible pain, I couldnt hardly walk, my right hip/upper leg was caused me the worst of pain..chest bone pain, headaches, couldnt sleep and felt I could kill someone if they looked at me wrong. I was on short term disability, missing my job and co workers.
Spin forwards to today....5 neurologist, 2 rhematologist, ER visits, hospital stay, 2 brain MRI's, 2 EMG's, CT, multiple x-rays, 1000's of dollars of lab work, lumbar MRI, EEG and so many many different medications. Been tested for rhematoid arthritis, wilsons disease, sjogrens disease, MS, polymyositis, parkinsons, lupus, lyme disease, HIV, hepatitis. What we know I have..parkinsonism (not parkinsons) fibromyalgia, myofacial syndorme.
All the crazy problems I have: Headaches all the time, have had several migraines, optical migraines, vision blurr (not doubled), memory loss, tremors (mainly on my right side) leg, arm, hand, neck...severe right hip/upper leg pain, burning with touch on both legs, many little nodules in both upper legs, tingling/numb hands and lower arm & feet and lower legs, muscle atrophy, problems when talking (either stop in mid sentence, studder, or forget words), chest bone pain, severe low back pain, muscle spasms in back, neck pain, weight loss, fatigue, irritable, cant sleep.
MS has been walked through, my PCP believes eventually that will be the diagnosis. My brain MRI shows 5-6 subcentimeters of FLAIR, the largest of these within the left frontal centrum semiovale measures 4mm. I will be having another one in the next couple of weeks. The initial EMG shows (L) sup pern sensory nerve showed no response (14cm). The (R) sup peron anti sensory nerve showed borerline reduced amplitude (3.5 uV). F wave studies indicate that the(L) peroneal F wave has no response. According to the impression, there is no significant abnormalities? I had another EMG today along with an EEG, tomorrow I will be having a VNG. The CT scan was done on my lower abdominal area to see if something in that area was causing the pain in my right hip area..well nothing like that was found, but they did find that I have renal cortical scarring (what that means?) I will go to the kidney doctor tomorrow to find out. In October 2008, lumbar MRI was within normal limits. Blood work for the most has alway been within normal limits. Medications: Davacet (pain), Hydrcodone 5.0. 7.5, and at this time take Hydocodone 10.0 all for pain. Cymbalta, Lyrica, Artane, Mysoline, Folgard, Ambian, Baclafon, Tizanidine, Provigil, Meloxicam, Prednisone.
I am a 45 yr old caucasion female, married for 15 years, 4 children, 6 grandchildren. I have always been a very physical person, hyperactive! I am 5'3" 136 pounds moderate financial stability, wonderful home and family where our Heavenly Father is the leader. I have been a smoker for many years and do drink dr peppers daily, no alcohol. I dont really eat meat, maybe once or twice a month. Sweets and chocolates are not a part of my menu, I am not much of an eater..one meal a day gets me by.
I write all the above stuff in hopes of having all the story put out there in true hopes of being completely diagnosed someday..Thanks for reading..I promise to make it reading friendly as best I can.
One year ago today, I woke up with pain in my left arm and breast. Thinking this was just something minimal, I headed to my PCP to get something for the pain. With the next week I saw 4 doctors, has a mammogram, ultrasound, x-rays and was on medication. Nothing was found, take the meds, use ice and it should all get better. Within weeks the pain had traveled across my chest to the other side. By the first of September, I was in so much pain I couldn't move my neck, my low back was in terrible pain, I couldnt hardly walk, my right hip/upper leg was caused me the worst of pain..chest bone pain, headaches, couldnt sleep and felt I could kill someone if they looked at me wrong. I was on short term disability, missing my job and co workers.
Spin forwards to today....5 neurologist, 2 rhematologist, ER visits, hospital stay, 2 brain MRI's, 2 EMG's, CT, multiple x-rays, 1000's of dollars of lab work, lumbar MRI, EEG and so many many different medications. Been tested for rhematoid arthritis, wilsons disease, sjogrens disease, MS, polymyositis, parkinsons, lupus, lyme disease, HIV, hepatitis. What we know I have..parkinsonism (not parkinsons) fibromyalgia, myofacial syndorme.
All the crazy problems I have: Headaches all the time, have had several migraines, optical migraines, vision blurr (not doubled), memory loss, tremors (mainly on my right side) leg, arm, hand, neck...severe right hip/upper leg pain, burning with touch on both legs, many little nodules in both upper legs, tingling/numb hands and lower arm & feet and lower legs, muscle atrophy, problems when talking (either stop in mid sentence, studder, or forget words), chest bone pain, severe low back pain, muscle spasms in back, neck pain, weight loss, fatigue, irritable, cant sleep.
MS has been walked through, my PCP believes eventually that will be the diagnosis. My brain MRI shows 5-6 subcentimeters of FLAIR, the largest of these within the left frontal centrum semiovale measures 4mm. I will be having another one in the next couple of weeks. The initial EMG shows (L) sup pern sensory nerve showed no response (14cm). The (R) sup peron anti sensory nerve showed borerline reduced amplitude (3.5 uV). F wave studies indicate that the(L) peroneal F wave has no response. According to the impression, there is no significant abnormalities? I had another EMG today along with an EEG, tomorrow I will be having a VNG. The CT scan was done on my lower abdominal area to see if something in that area was causing the pain in my right hip area..well nothing like that was found, but they did find that I have renal cortical scarring (what that means?) I will go to the kidney doctor tomorrow to find out. In October 2008, lumbar MRI was within normal limits. Blood work for the most has alway been within normal limits. Medications: Davacet (pain), Hydrcodone 5.0. 7.5, and at this time take Hydocodone 10.0 all for pain. Cymbalta, Lyrica, Artane, Mysoline, Folgard, Ambian, Baclafon, Tizanidine, Provigil, Meloxicam, Prednisone.
I am a 45 yr old caucasion female, married for 15 years, 4 children, 6 grandchildren. I have always been a very physical person, hyperactive! I am 5'3" 136 pounds moderate financial stability, wonderful home and family where our Heavenly Father is the leader. I have been a smoker for many years and do drink dr peppers daily, no alcohol. I dont really eat meat, maybe once or twice a month. Sweets and chocolates are not a part of my menu, I am not much of an eater..one meal a day gets me by.
I write all the above stuff in hopes of having all the story put out there in true hopes of being completely diagnosed someday..Thanks for reading..I promise to make it reading friendly as best I can.
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